Tuesday, April 29, 2008

Sadie gets glasses!!!

Saturday, April 19, 2008

You just knew this was going to happen...

Jack took his laptop outside with his friends today- He came in and informed me that he had made a blog-...and taught his friends how-...the entire thing- ...just decided to do it-...made an account and everything-...picked the address too.

Also, I think it is important to say that the picture on his blog was done by him- notice how he is IN the picture?

Yea...he set the automatic timer.

is this normal?


So for the action on our street, you can surf on over to icoolkids-

Sunday, April 13, 2008

Jack's 2nd Movie...

Here is a new movie from jack-

He did the entire thing with no help from anyone.

(I especially like the end...)

Thursday, April 10, 2008

Now we are getting somewhere!

Ah, progress.
Last November we met with the Neurologist for the first time. An MRI and several other tests (genetic microarray, SMA, some metabolictests, etc.) were scheduled for mid-January. The appointment was cancelled because Sadie got RSV and was hospitalized for 6 days. The appointment was then re-scheduled for late March and was cancelled the day before by the anesthesiology department because Sadie had gotten a cold some 2 weeks prior and could not shake a persistant cough. Last week we went back up to the same hospital (Dartmouth Hitchcock)to see the developmental pediatrician(s). After a two hour appointment (updating the team, physical asscessment and consult) we were told that Sadie has the characteristics of a child with Cerebral Palsey. I had anticipated hearing this possibility because her peditrician had alluded to the same about 3 months earlier. It was made clear that we still needed to get the testing completed and that this was JUST a clinical diagnosis. We were given two pieces of very good news. First, Sadie does not appear to be at all affected cognitively. Second, the ball is now rolling to get Sadie access to equipment that will help her significantly (i.e. AFO's, stander,therapy chair/table, carseat, stroller, support vest, etc.) that we had been holding off on for want of a dx. Patrick called this week to reschedule the MRI and testing for a third time. The first answer was mid-May. He requested a conference call with MRI, anesthesia and neurology booking and somehow sweet-talked them into getting an appointment that sounded more promising.We are going tomorrow.
Spring has finally arrived!

Wednesday, April 9, 2008

Back in time...

I was looking at older videos, and I thought I would repost this one...I love it.